Episode 39: What They Never Told Me To Expect


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When a family learns their child has a disability, the road ahead is often filled with many questions, pain and unknowns. In this episode, Lesley chats with two very special mamas about their very special kids. Katie Blackburn (a listener favorite and our first returning guest!) is back sharing about her son’s recent autism diagnosis along with Regina Robinson, mama to four children including a son with Down Syndrome. We encourage all women to listen to this episode with a pen in hand, ready to learn how to navigate the waters of a new diagnosis, or, to simply discover how to encourage the families at your playgrounds and churches who need friends in their journey.


Show Notes

Thank you to our sponsors, KIND Snacks and Modsy, two brands we LOVE and hope you’ll love too. You can try 10 different, full-size KIND Bars for FREE, just pay shipping, when you sign up for the sample box. Go to KindSnacks.com/coffee

And, as promised, here are some photos of Lesley’s current bedroom, along with Modsy’s 3D renderings. Lesley says she especially loves the idea of moving her bed under the window. The fun thing about Modsy is that you can even edit the renderings to include some of your current furniture mixed with new items. (A great way to work with what you already have while still freshening up your space!)

Lesley's current room:

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Current room 2.jpg

Lesley's room makeover planning with Modsy:

Option A

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Option B 

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Connect with Katie Blackburn by visiting her blog, Just Enough Brave. Or find her on Instagram and Coffee + Crumbs. Listen to It’s Their Day Too (one of our listener favorites!) by clicking here.

Connect with Regina Robinson on Twitter. Learn more about her in this interview with The Gospel Coalition, or consider seeing her speak in 2018 at the Gospel Coalition Women’s Conference.

Katie’s Recommended Reads:

The Life We Never Expected by Andrew and Rachel Wilson

The Reason I Jump by Naoki Higashida

Disability and the Sovereign Goodness of God by John Piper

Posts from Katie’s blog about their family’s first year navigating autism:

Perfect Start, Perfect End

The Blame Game

Dear Autism

What I Wish I Would Have Said

Regina’s Recommended Reads:

Rosemary: The Hidden Kennedy Daughter by Kate Larson

Fully Alive: Discovering What Matters Most by Timothy Shriver

Do you want to get involved with policy changes for kids with special needs?

Start here:

National Down Syndrome Congress

Federation for Children with Special Needs

Joni and Friends